The Jed Foundation at 25

The Jed Foundation (JED) annual gala in New York City never fails to impress. The beautifully choreographed event at Cipriani’s in Lower Manhattan draws participants of all kinds, from celebrities and well-heeled patrons to behavioral health advocates and young people from across the country. But behind the production and couture is a non-profit start-up with a remarkable influence on the mental health and well-being of high school and college students — and one of the country’s most significant and little-known success stories.  

This year’s gala was particularly inspirational, breaking records in attendance and fundraising while featuring personalities such as TV anchor Savannah Sellers and New England Patriots owner Robert Kraft, who bestowed a lifetime achievement award on his friend and former college classmate, Phillip Satow. The gala honored the twenty-fifth year of the country’s leading non-profit dedicated to protecting emotional health and preventing suicide in young people, as well as the retirement of Satow, its co-founder, who has moved from Chairman of the Board of Directors to Chairman Emeritus and Board member. 

Phil and Donna Satow launched The Jed Foundation in 2000 in acknowledgement of the life and sudden death of their youngest child, Jed, who died by suicide two years earlier when he was a student at the University of Arizona. What the Satows chose to do with their unimaginable grief would change how colleges and universities view their role in protecting their students from tragedies such as Jed’s.

JED’s work in the past twenty-five years has not only provided an evidence-based model for suicide prevention, it has brought to the surface the important and sensitive truth that, for many, the college years are the most developmentally challenging of their lives. 

In accepting his award, Satow told the story of when, shortly after Jed’s death, the president of his son’s university asked him and his wife Donna the question that would lead to the launch of the Foundation. “What can I do to improve the safety of my 30,000 students?” Satow, who was already a highly successful pharmaceutical executive, responded in the best way he knew how: he and Donna devoted themselves to finding an answer to the question. 

Satow’s first “kitchen cabinet” was made up of medical professionals, suicide prevention experts, and business colleagues. After years of raising awareness and developing JED’s Comprehensive Approach to Mental Health Promotion and Suicide Prevention for Colleges and Universities, the organization began offering JED Campus. Launched in 2013, the program engages colleges and universities in collaborative work with a dedicated JED Campus Advisor over the course of four years. After conducting an initial needs assessment, the Campus Advisor draws on the data to create a strategic plan with actionable opportunities that span seven domains: develop life skills; promote social connectedness; identify students at risk; increase help-seeking behavior; provide mental health and substance misuse services; follow crisis-management procedures; and promote means safety. 

In April 2024, JED published an impact report detailing improvements to student mental health at schools that completed JED Campus titled A Decade of Improving College Mental Health Systems: JED Campus Impact Report. A decade of data (2013 to 2023) from JED Campus schools and the Healthy Minds Network survey were analyzed and found schools that completed JED Campus saw statistically significant improvements in student mental health at the end of the program. Students at participating institutions were 25% less likely to report a suicide attempt, 13% less likely to report suicide planning, and 10% less likely to report suicidal ideation. Students whose schools make more progress on their JED strategic plans are more likely to demonstrate improvement. 

JED Campus is now in over 450 colleges and universities in the United States, reaching 5.6 million students, with the core of its programming expanding into high schools and school districts throughout the country. In 2022, JED received a $15 million grant from Mackenzie Scott, which Satow hopes will triple the number of students it reaches over the next several years, someday reaching more than 50 percent of colleges and universities. JED has recently doubled its staff from 40 to 95 to cover its expanding programming, which includes webinars and trainings, original research and reports, consulting services, public awareness campaigns, youth mental health resources, and policy, advocacy, and government relations work on the local, state, and federal levels. 

Shortly after the gala, Satow spoke with LearningWell about these accomplishments, including living up to expectations, proving the organization’s impact, and finally being able to answer the University of Arizona president’s question. 

LearningWell: Did you believe back in 2000 that the Jed Foundation would grow to this size and scope?

Phillip Satow: In many ways, yes. This was a hope that I had after I lost my son, when I thought about how many other kids were in similar situations and how many other families would be affected by a loss like ours. And here was a college president, obviously a very bright man, and he had no constructive idea what to do. And it dawned on me that we could have an incredible impact if we could establish a safety net under thousands of kids across so many campuses.

Shortly after Jed died, I brought together a number of experts and posed the question that I was asked by Jed’s college president.  They responded by suggesting the applicability of a model, sourced from the U.S.  Air Force and published in The British Medical Journal, with outcome data that showed it actually reduced suicide. So we had a model with evidence, and when we first started, one of the things we thought about was how broad our approach should be. Should we think horizontally or vertically? Should we bring this information to one school at a time, or should we bring awareness to all campuses in the United States and let them know a prevention model like this could really work to reduce suicide on their campuses? We ended up going horizontal, and even though we were small, we wanted to make sure that as many college counseling centers we could get to would have this information. I really did have that dream.

It would be very hard for many presidents not to feel obligated to call on JED, because we know we can indeed make a difference on their campuses.

LW: For a non-profit, JED is very entrepreneurial. You started outside of higher education and now serve so many colleges and universities and high schools. Do you ever think about how what you built can be applied in other scenarios? 

PS: I do, often. The idea for the model was far-sighted in many ways. In boundaried communities, you have leadership in a position to say, “Here is our policy that I am asking you to follow.” If you look at suicide in general in the United States, so many occur in boundaried communities like prisons and large health care systems. I believe there is something to our model that allows it to be applied more broadly than in colleges or in other academic spaces. We now consult with corporations and other organizations like national fraternities and even professional sports organizations. 

LW: What were some of the big milestones for you in JED’s 25-year history?

PS: I think there were a few things that really changed our growth trajectory. The decision to put “boots on the ground” made a big difference. At first, we put our model out there, but it was up to the schools to implement it. Over time, we decided it was important to have people assigned to schools and committees formed that we could collaborate with. That became the JED Campus program. Another major milestone for us came about due to the pandemic, which of course made things difficult for us, as for everyone, but it did bring the JED message alive – that mental health was an important priority for schools. And the third area that really distinguishes us is our data collection effort. We have an extraordinary amount of data that we can continuously display as evidence of our impact. From the beginning, we were always looking to collect support data for our impact framework.  I think that’s what sets us apart.

LW: When did you feel as though you had an answer to the question Jed’s college president asked you? 

PS: We had a subjective feeling as we were rolling out the JED Campus program into hundreds of schools but in the last couple of years there’s been real evidence of this. The American Council on Education released a survey in 2021 that showed that over 70% of college presidents reported that student mental health was their number one priority. Our impact report really shows how the needle has moved. Students at JED schools were 25% less likely to report a suicide attempt. This is all real data that shows how much has changed since 2000. 

LW: What directions do you see JED going in now?

PS: There’s much more to do in the college space. I think that, with the data we have, it would be very hard for many presidents not to feel obligated to call on JED, because we know we can indeed make a difference on their campuses. There are also around over 20,000 high schools in the United States, and we have a lot of work to do there. We’ve just launched a partnership with AASA, The Superintendents Association,  with the goal to help many K-12 school districts implement a comprehensive approach to mental health and suicide prevention

I think we will end up expanding significantly, but at the same time, we don’t want our success to hamper us. I know from my business career that if you take on too much, you may not do anything very well. And when we’re talking about kids’ lives, you’ve got to do everything superbly. So, I think the real challenge will be how we successfully assure high quality control in all those thousands of high schools and colleges. I don’t think anyone wants to see JED, as we continue to expand, be an organization of hundreds of employees.  We’ll need to use the latest technology in every way possible in order to provide excellent support in each school we serve.

LW: What do you think has been the secret to JED’ success?PS: First of all, it’s the people, starting with John MacPhee, our CEO for 12 years. Also our medical and clinical personnel, and of course, our excellent development department. We have also used leverage very well to scale our work – our partnership with AASA, The Superintendents Association, is an example. We are not just doing this one-school-at-a-time, and that has really benefited us. And the last thing would be our focus on outcomes data. Most organizations in the mental health field don’t have the data to prove that what they’re doing works. I think the fact that I came from the pharmaceutical industry (as did John) was helpful in that regard. We know that, in the health care world,you can’t promote anything that doesn’t have data to support it. I think that’s been a highly important concept that has been transferred to our work at the Jed Foundation. 

This Is Us

It is a cold, rainy day in March, but Vassar’s campus still holds its appearance as the beautiful, contemplative place of learning for which it is famous. Its lush green quads and remarkable architecture reflect a traditional liberal arts experience. But like any community, Vassar is more than it appears to visitors. Over the past two decades, its landscape has significantly changed in many ways, both positive and challenging. 

Among its many distinctions, including its outsized number of famous alumni, Vassar’s President Elizabeth Bradley hopes the school will be known as a place of good health and wellbeing. To make this vision a reality, she recognizes that the college must establish a universal sense of belonging amid a new, more diverse student body where students of various identities express different expectations and needs. Like their Gen Z peers everywhere, many Vassar students struggle with their mental health.  

Since becoming President in 2017, Bradley has worked with faculty and the college’s senior leadership team to foster a campus of wellbeing as a key part of her administration’s agenda, with a focus on belonging in the classroom and in the community. “When I think of wellbeing, I think about our students’ ability to thrive, and to grow, and to learn to become confident young adults who will go out and do the things that are in their hearts to do,” she said. “You can’t thrive if you feel like you don’t belong — in or out of the classroom.”

A noted public health expert, Bradley believes success in this area requires all campus stakeholders to work on improving wellbeing within their respective realms and across departments when necessary. This means professors being attuned to the personal and emotional aspects of their students’ lives and practicing inclusive pedagogy along with their areas of expertise. Student affairs roles, such as the office of Student Growth and Engagement, steer students toward co-curricular activities that help them “thrive, not just survive.” 

Mental health services are highly utilized and, like many college counseling centers, the office is experimenting with new strategies like bringing community partners onto campus for students with acute needs. But even mental health is not confined to any one service, partly due to capacity and partly due to philosophy. Early in his tenure, Dean of the College Carlos Alamo-Pastrana asked, “Can we, as a community, shift our perspective on whose responsibility it is to think about wellness?” 

One inter-departmental effort that is central to wellbeing and belonging is the Office of Engaged Pluralism (EP). Like the term implies, EP seeks to engage all community members in acknowledging differences through an asset-lens where unique perspectives and norms are respected, if not universally agreed upon. It is both a program (offering workshops, trainings and events) and a pledge. The concept evolved from tensions on campus shortly after Vassar moved to need-blind admissions and the student body make-up changed significantly. 

All of these efforts, taken together, are demonstrations of the college’s commitment to building a campus of wellbeing, and one can’t help but wonder what role initiatives such as Engaged Pluralism may have played in more recent controversies, including the voluntary, and atypical, removal of the pro-Palestinian encampment at the school. But to better understand how Vassar’s intentionality on wellbeing and belonging has affected its students overall, LW discussed the topic with four students in various stages of their education. In this enlightening interview, the students talked honestly and graciously about their aspirations, their challenges, and what wellbeing means to them. Here is an edited transcript of some of what they had to say. 

Editor’s note: It is unclear whether any of the interviewees participated in the Vassar protest encampment which occurred after this conversation, but it is worth noting that each of them expressed support for the right to protest on this and other issues, though it is not reflected in this transcript. 

LW: Let’s start with mental health and wellbeing. What kinds of supports or strategies help you thrive here at Vassar?

Marissa is a junior majoring in Science, Technology and Society (STS) with a minor in prison studies.

Marissa: For me – I’m a student leader here on campus alongside a whole bunch of other amazing students. I’m the vice president of the Black Student Union. I’m the co-head of a small concert throwing organization that we have on campus. My friends are always saying, “Marissa, you’re so busy. How do you do it?” But I think the thing that allows me to do all these different things and be in all these different places but still be flourishing is the fact that I’m consistently working with people who all love it. We come together and we support each other and I think for me, thriving is being in these spaces where you are able to laugh but then cry about assignments and experience this whole breadth of emotions. The school has a counseling center, and there’s been times where I went there – some were good and some were not.But I feel like, overall, the thing that really allows me to continue going and not burn myself out is being in these spaces with these people. 

Prisha is a senior psychology major and international student from Bangalore, India.

Prisha: Can I add on to that? I think something that might go unnoticed, but that I feel has a big impact, is the fact that we acknowledge that mental health, your mental health, changes every day and that it does impact your work and your interpersonal relationships. Coming from an international standpoint, I think a lot of students come here as first-generation students arriving in a new country with all of these aspirations and goals for themselves and also expectations that I feel like they don’t give themselves enough grace around. They’re doing a lot here and their wellbeing is a part of something they need to take care of, not just their futures. 

For me, it’s in the really little things that I find solace; just having check-ins at the start of class or meetings like the “rose, thorn and bud question” — a rose is what went well this week. A thorn is something that didn’t go as well and a bud is something you’re looking forward to. Before I was asked those questions, I didn’t even think in that frame of mind of, “Oh, what went well this week?” I actually began to think about myself and what I’m putting out in the world, more than just going through the motions.

“My peers are a significant source of support for me. Another is my professors.”

Maya is a senior biochemistry and psychology double major.

Maya: I think I approach wellbeing from three avenues. My peers are a significant source of support for me. Another is my professors. I know that there are professors on campus who push you and want you to do your best, and sometimes it can feel very overwhelming. But there are other professors who are very, very understanding. I remember two years ago, I was going through a very difficult situation in my personal life and I was able to reach out to my professors and they immediately said, “I can be that avenue for you to make sure that you’re advocating for yourself and advocating for what you need during this time, extensions, whatever.” In general, professors will work with you, which is so nice on this campus. And that definitely helps a lot because things can get very overwhelming very quickly, especially during this time of year when you have burnout from papers and finals. 

But then the third avenue for me is all the work that I do as a leader on campus. I work at the women’s center. I’m a women’s center intern, and we do a lot of events that are centered around wellbeing, but I also lead a women of faith group. Religion is very important to me and has become even increasingly important to me as my years at Vassar have gone on. Which is interesting because a lot of people look at Vassar and they’re like, “Oh, it’s a liberal arts school. You could do so many other things. Why talk about religion?” I am a Christian and my beliefs have developed throughout my time here. And that’s because I’ve been able to ground myself in these groups and in these places where other people also believe. And the women of faith group, I mean we have people who are Jewish, we have people who are Muslim, we have people who are Christians and they’re coming from all different perspectives, but we’re able to unite about our experiences on this campus as well in life. And that has been so centering for me.

Mia is a first year, first-generation college student.

Mia: I would say a lot of the same things. Community is huge. I don’t think I would’ve made it through the year if I didn’t have people to rely on or people to have conversations with. And just to know that you’re not alone. People are having the same experiences, especially when you’re transitioning from high school to college. For me that included feeling like you don’t necessarily belong in the classroom just based on everyone else’s background. I am a first-generation, low- income student and I look at other people in the classroom and sometimes I think, “Do I really belong here?” Then I’ll talk to other people and it’s a very common experience to feel like that — it’s very normal. Knowing that you’re not alone makes it a lot better and helps you find ways to feel comfortable in this space.  The role of professors is huge. Before I came here, I’d never heard of a mental health day. I had a professor who said, “If you need a mental health day, you can just take it. You don’t have to email me or anything.” And I realized, wow, there’s a really big emphasis on who you are as a person outside of your academics. That is something that is sometimes really hard for me to separate because I’m a goal-oriented person. I will get through this task no matter what because I’m looking at a bigger picture. And sometimes that also can harm me because it can lead to burnout. Sometimes I have moments where I realize, “Wow, I’m definitely struggling.”

LW: What are some of the challenges to wellbeing and belonging here? How can things be improved? 

Prisha: I think I can give this a go. All of us need to better understand our different cultures and perspectives. I work at the Office of International Services and we do a bunch of these events throughout the year, some big, some small, all celebrating the different cultures that are present on our campus and give students, especially international students, a platform to celebrate their own cultures as well as to spread awareness. And something we always face is how can we get more students to come engage with us? I think a lot of international students feel the need to just disappear into the crowd of white Americans here on campus, and they feel a really strong need to conform.

“Considering how fast college goes by, you have to create your belonging quickly in four years.”

I think another way to cultivate a larger sense of belonging is how can we get white Americans or locals to also look at what we do? It’s like you see the email and right away, it’s not for me. And it’s just such a missed opportunity. If it was the other way around, if instead of putting the pressure on international students to fit in, we got all students to learn about all the different kinds of cultures we have here, it would benefit everyone. You would learn to be more tolerant, be more open. “Hey, this is what exists outside of this campus, outside of this state, this country, and this is what’s going on, and you should look at it.” That is something I’d like to change. 

Marissa: It can be tough here sometimes. Vassar is a PWI, predominantly white institution, and I think statistically the numbers of students of color are going up, but you could look out into the college center, into the dining hall, and it doesn’t feel that way. Oftentimes I hear people say, “This is a really small school. I feel like I know everybody.” And I think, “I don’t know everybody.” And I think that’s because even as extroverted as I am, there are different pools here, you have your cliques. Vassar is still just like any other school that way. And sometimes it can be hard to mesh those, even when we are all taught to be very multidisciplinary and interconnected. That’s why I rely on my peers to uphold one another. But sometimes it feels like if we don’t do it, nobody else is going to. And then we could fall through the cracks. Considering how fast college goes by, you have to create your belonging quickly in four years. And then you want to be able to not just make your own belonging, but to make spaces for other people like you to belong that are consistent, that are long lasting, that don’t disappear. 

Mia: I knew coming here it was going to be humbling. I knew the workload, the difference in material and curriculum was going to be huge for me. I came from a Title 1 school. It was not going to be the same. There’s always going to be something you don’t know. I think my biggest fear was also not having a community here. I was so scared I wasn’t going to make friends. I thought, “I’m going to be all alone. This is going to be so hard.” But I came in and I made friends the very first week, and they’re still my friends now. We’re eight months down the line and we have dinner every single night. You don’t realize how much people will impact you as you spend time here. So, I think you expect certain things and you just don’t know what it’s really going to be like until you get here. 

LW: You are all so inspiring and accomplished. I wonder, have you thought much about your purpose in life, which is different from just what you want to do. 

Maya: For me, personally, the desire to go into research, and specifically researching disorders like ALS, is because my dad was diagnosed with ALS and he passed away two years ago. (That’s the personal thing that I was struggling with.) So that was very embedded in me since his diagnosis. I understand the person suffering as well as how much suffering their family is going through and how much support they need during this time. And the fact that we have so many unanswered questions remaining despite all of the technological advancements that we have, seems like we need to really focus on certain aspects of these diseases to further our understanding and to further treatment and cures to these problems. I do think my experiences on campus, specifically talking with other people who are in my majors, who are also close friends, has further solidified my interest in research. I see the research that they’re doing with other professors on campus, or I see what they’re learning about and I’m like, oh, that’s really interesting. I want to learn about that, too. I would definitely say that finding my purpose in life has been facilitated throughout my time at Vassar. 

Marissa: I think, at least for me, my purpose — the thing that drives me — is to be happy. Because there was a period where I really wasn’t. And I look back at my younger self and I just want to give her a hug. But I look at her with grace and I look at the journey and I’m so grateful that I was able to go on it. And when I’m here, I think I also believe in the power of storytelling. And telling the stories, whether it be how it was back then or where I’m at now, it’s just being able to do that. And I think what college gave me was a toolbox for all that.

Reading Between the Lines

The average age of a college president today is sixty. That makes them too young to have participated in the major social movements of the 1960s and not too old to be keenly aware of the emotional and mental health problems reported by young people today. These leaders are now navigating the minefield of issues laid bare by student protests over the war in Gaza, including the internal and external political pressures that have pushed them into defensive positions. As they contend with conflict in the most public of ways, they should make a connection amid the chaos to something most have long advocated for: the wellbeing and personal development of their students as they stand in solidarity around an issue for which they care deeply.  

Every protest movement has a wide range of viewpoints, and this does not excuse any of the bad actors or extreme views on any side of this issue. But for someone who has reported on college student mental health and wellbeing throughout the “college mental health crisis,” I cannot help but link the most active campus protests we’ve seen in years with some of the elements of emotional wellbeing we hope our young people will experience – agency, empathy, belonging and sense of purpose. The absence of these elements has created the loneliness and isolation that Surgeon General Vivek Murthy included in his young adult mental health advisory of 2021 and his book Together, wherein he discusses America’s loneliness epidemic and the healing power of human connection. 

For over a decade, college students have reported a significant increase in anxiety and depression, along with high rates of loneliness, plateauing during the pandemic and remaining prevalent today. Gen Z students, who have been dubbed “The Anxious Generation,” are also feared to lack independence, to be overly tethered to their parents, and to be unable to advocate for themselves. College administrators have addressed this problem in myriad ways, from increasing mental health support resources to experimenting with co-curricular programs designed to help students build resilience and a sense of belonging. First-year programs now frequently include reflection about purpose and meaning as a way to center anxious students and give them the grace of seeing themselves in the bigger picture. Affinity groups, often organized by the school, help socially wary young adults find their people. 

The students united in protest, some in traditionally opposing camps, are their own curated affinity group.

There is a connection here between students’ fervent reaction to the war in Gaza and their social and emotional health that is understandably buried in the severity of the issue and the thorny consequences of the protests. Participation in protests can improve students’ sense of belonging and identity, leading to positive mental health outcomes. “In higher education, we want students to feel like they belong to a community. Participating in activism, such as protests, allows students to be in a community with other people who share their same values and can provide them with meaningful connections to others,” wrote Dr. Samantha Smith in an op-ed for LearningWell.  

The literature is particularly robust on the connection between purpose and wellbeing. Research indicates that having a purpose in life is significantly associated with lower levels of depression and anxiety and may increase resilience after exposure to negative events. To the extent that their method of protest aligns with their good intent, we should recognize that the majority of these students are standing up for the humanity of others — and that is a good thing for a generation accused of obsessing about their images on social media. 

The more the movement grows, the more valid these arguments become. Given the momentum, administrators can no longer view this as the predictable behavior of certain student groups. There is something bigger going on. Perhaps most promising is that the movement is entirely student-driven. The students united in protest, some in traditionally opposing camps, are their own curated affinity group. Their passion is evidence that the teenagers who finished high school in their bedrooms and on their screens have learned to find their outside voices. Let this be a positive element in an otherwise complex and difficult leadership challenge.

The Jed Foundation/SHEEO Mental Health and Equity Initiative

In 2023, the State Higher Education Executive Officers Association (SHEEO) and The Jed Foundation (JED) launched a learning community across state higher education agencies and systems  to better support college student mental health and determinants such as equity and belonging. In late April, SHEEO and JED will host a convening in Minneapolis, “The Wellness Blueprint: Cultivating Foundations for Statewide Student Mental Health Policy,” with the purpose of continuing the development and implementation of state- and system-wide policy recommendations to advance student mental health and wellness. The hope is after a year-long collaboration, states will have moved the needle on a problem that lies at the intersection of each organization’s area of advocacy and expertise: mental health challenges remain the number one reason students stop out or consider stopping out of their post-secondary programs.

Dr. John Lane is the Vice President for Academic Affairs and Equity Initiatives at SHEEO, where he leads policy and project development in educational equity, academic programs, and student success. SHEEO works with state higher education officers to promote equitable higher education attainment for all Americans. 

“Whether these challenges are crisis circumstances or are accumulated over time and hidden, students identify mental health as the primary challenge to their academic persistence and achievement,” says Lane. The issue is exacerbated for low-income students, many of whom will never return to school, and are often laden with debt and the result is no degree to show for it.  

Last year, states submitted grant proposals detailing their plans and commitments to mental health as a facet of equity in higher education, as well as their efforts to engage internal stakeholders, such as a state Department of Public Health. Five states — Arizona, Louisiana, Oregon, Pennsylvania, and Texas — were selected to receive $25,000 grants to support their work to implement mental health solutions tailored to their unique contexts over a 15-month period. The objective of the partnership was to provide states with the resources to explore how mental health and equity are being addressed and to share their findings through cross-state collaboration. 

The Jed Foundation brings decades of research and expertise in suicide prevention and student mental health to the table. It is also another example of an expanding focus for the non-profit, which has recently added a public affairs and advocacy component to its work with colleges and high schools.  The JED Equitable Implementation Framework and the JED Campus Program will be used to guide state policymakers in creating a space for states to identify best practices, refine strategies, and work toward inter-state collaboration. The Jed Foundation has a longstanding precedent of centering student mental health as an academic issue, making its partnership with SHEEO an opportunity for the organizations to implement robust, research-supported policy change, study best practices as tailored to states’ unique resources and needs, and improve student outcomes by working directly with policymakers. 

“There is no rulebook right now for investing in student mental health at the state level. We are building as we climb.”

Dr. Zainab Okolo is the Senior Vice President of Policy, Advocacy, and Government Relations at the Jed Foundation. Okolo says the mission of the learning community is to help guide state systems in centering mental health in state and federal policy. “What we found at JED was a gap and an opportunity,” she says. “In response to the mental health crisis that was exacerbated during the pandemic, we saw many state-level leaders begin to directly invest in mental health. Governors had clear new line items around mental health — but there wasn’t any guidance on how to actually move the needle on mental health, or whether or not the investments being made at the state level were answering the questions around how we destigmatize mental health, how we expand resources, and how we ensure that students, particularly within school settings, are having their mental health needs met so they can continue to thrive as they pursue their degrees.” In having conversations with their partners at SHEEO, an imperative emerged to ensure that state policymakers had the means to support the work that they were already investing in. The priority was there, Okolo says, but procedural clarity wasn’t: “There is no rulebook right now for investing in student mental health at the state level. We are building as we climb.”

A Just Design

The mental health learning community comes at a time when mental health is a steadfast feature of public discourse and a topic of conversation on the federal stage. “There is a great opportunity here to take advantage of the attention that is being rightly paid to this work, as recently as the President’s State of the Union address,” says Lane.“We are so fortunate to do this work now; we have the Surgeon General whose platform is mental health, and the Secretary of Education who cares about the wellbeing and mental health of college students, and wants to know how to best sustain support for students and for systems that are supporting them.” 

According to Okolo, bringing states together on these issues highlights the similarities of their positions even as they navigate different political landscapes. “They’re all grappling with very similar questions. How do you scale crisis response? What specific policy levers need to be in place in order to continue this work, even beyond this kind of mental health Renaissance moment? How do we flag for our federal stakeholders and leaders that we need harder lines of funding to continue on even beyond these next couple of years? The learning community creates a space for states to collaborate and learn from each other.”

The five states selected for the learning community project — Texas, Oregon, Pennsylvania, Arizona, and Louisiana — represent a diverse range of education policy, resources, and student demographics. “We were deliberate about the variety of states,” says Lane. “The topography of the states is representative of a deeper conversation about how we tailor our work to the unique circumstances of each state. The political landscape varies greatly across these five states. So does the availability of resources, the governance model and the engagement profile. So, states work really hard to build consensus among their stakeholders, and regardless of the model, try to provide direction to help set important way points.”

Texas is one of several U.S. states to implement changes to its diversity, equity, and inclusion (DEI) policies within the last year. Senate Bill 17 banned all DEI programming from public colleges and universities in the state, creating  potential mental health risks for students who relied on affinity groups and identity-based spaces to cultivate a sense of inclusion and belonging on campus. These changes to DEI policies went into effect after the launch of the learning community, Okolo points out, and only reinforce the importance of adaptability and community engagement. When mental health initiatives find themselves in the crosshairs of fraught political divides, they reveal a unique area of bipartisanship. 

“The interesting thing about working within these political contexts is that this work remains bipartisan,” Okolo explains. “We see clarity around the importance of mental health echoed across states. What’s not bipartisan is the approach to issues around parental access, data, and funding. So the approach is not bipartisan, but the issue and the framing of the issue remains undoubtedly bipartisan. We want to keep it that way and lean into that opportunity by learning about how to do this work no matter the political ground that we find ourselves in.”

The public spirit, Lane and Okolo say, has not changed even where laws have. DEI “is directly adjacent to our mental health work, and it influences the scope of our reach when it comes to identifying needs based on race,” says Okolo. “What I’m happy to see, though, is that Texas made a commitment to making mental health resources accessible to all. What the ban might mean is that the language, how we frame it, what we call it, may change. But it doesn’t change the intent of the work.”

The mental health learning community leans into designing equitable futures within the contexts of each state. This, Lane says, calls for new approaches to address the systemic biases and inequity that are known contributors to the lack of access to mental health supports and can therefore serve as deterrents to student success and degree attainment. As a result, new projects at SHEEO include more dialogue about “just design.” According to Lane, “If you know pre-existing structures, and best efforts in the past have resulted in the need for current work and equity to try to mitigate disparities, then, if we have new solutions without addressing those original systemic circumstances, we could accidentally perpetuate the disparities that equity efforts are meant to close.” 

“The topography of the states is representative of a deeper conversation about how we tailor our work to the unique circumstances of each state. The political landscape varies greatly across these five states. So does the availability of resources, the governance model and the engagement profile.”

In order to address systemic discrimination and avoid repeating previously unsuccessful — and potentially harmful — initiatives, Lane says states must raise questions about designing systems and environments. A just design, he says, is one that centers community engagement, student voices, and adaptability to different states and institutions. The SHEEO/JED collaboration is currently building a student panel to foreground the student experience in policy reform. The goal is to not only amplify student voices, but to give students a seat at the table of changemaking. 

“Our goal to center student voices goes beyond the traditional model, which often includes bringing on students who share a narrative in the first-person,” Lane says. “My feeling is that too often we resume the policy work without taking an important next step, and that next step is giving students a sense of agency so that they are at the table with us as thought partners and are mentored in collaborating around policy in a way that helps us in the present, that gives them development opportunities for the future and really enriches the work that we’re doing.”

Lane and Okolo are looking forward to the late April conference to collectively assess how much has been accomplished and to provide a best practices guide. “What we are hoping to achieve with the best practices guide is a bit of a north star and a guardrail context on what to consider when implementing and scaling mental health work within your state,” Okolo says. “What are the blind spots? Who are the unsung heroes and key stakeholders that should be at the table when making these decisions? What opportunities do you have to triage off campus? What community-based organizations do you have at your fingertips to close the gap between resources on your campus and ensuring that students get the support that they need? Those kinds of strategic levers are what we hope to outline, so that if the state never engages with us directly, they have a way of navigating this work within their state context.”

New survey shows stop-out rates remain steady; emotional stress, mental health are main drivers

A new survey report from the Lumina Foundation-Gallup State of Higher Education study shows that the number of students considering leaving their post-secondary positions has remained about the same as last year and that emotional stress and personal mental health continue to top the list of drivers, just ahead of cost. The survey also showed that Black and Hispanic students are more likely than their White peers to report they have considered leaving school (Hispanic (42%) and Black (40%) compared to White (31%)). 

Stephanie Marken, the senior partner of Gallup’s education division and author of the report, says the findings within the more than 14,000-person survey are particularly instructive for colleges and universities keeping a watchful eye on both overall retention and efforts to increase enrollment for underrepresented groups.

“One of the most interesting findings from my perspective is that people are about as likely as they were last year to consider stopping out in general, about 1 in 3,” said Marken, referring to data in the 2023 Lumina-Gallup survey.  The report notes that postsecondary enrollment, although up slightly due to increases for community college and short-term credential programs, have been steadily declining for the past four years. The fact that the number of those considering stopping out has also remained steady, indicates initial losses due to the pandemic may be more of a trend than a disruption.   

“This is alarming on a number of levels,” said Marken. “We know that from a social mobility perspective, from an economic perspective, people who complete a college degree are far more likely to be thriving in their lives. Whether it’s their career, their financial future, or their general wellbeing. The group that is even more disadvantaged is the “some college, no degree” cohort (those who stop out and never come back) who have huge amounts of student loans and nothing to show for it.” 

The report finds that consideration (of leaving) among Blacks and Hispanics has improved slightly but is still higher than among their White peers.  Marken sees the losses among this group as even more problematic when considering the outsized gain disadvantaged groups, including women, receive from a college degree.  

“We know that from a social mobility perspective, from an economic perspective, people who complete a college degree are far more likely to be thriving in their lives.“

“When we think about people who have been historically marginalized in our workplaces, in our communities, in our institutions, as Black and Hispanic individuals have been, we see that the lift those individuals experience is significant when it comes to receiving a college education,” she said.  “They enter the workplace in a very different situation from a pay perspective, even more so than their white peers.”  

Marken says the consistency among all racial/ethnic groups about the primary reasons for considering leaving school (emotional stress, mental health) is particularly concerning. 

“The fact that emotional stress and personal mental health are universal reasons (for consideration of leaving) and have remained as high as they are is a good reminder that all students are struggling and the core foundational need to stay enrolled is to have a strong sense of wellbeing,” she said. “We know that for Black and Hispanic students, because more of them are considering stopping out, it’s a really high need within those communities.”  

The recent survey is the latest in a series within the Lumina Foundation-Gallup State of Higher Education study.  Begun in 2020, the research first looked at the learning experiences of enrolled students amidst the pandemic but expanded to include non-enrolled individuals or those who have left college in an effort to understand what drove them to opt-out or stop out.  Marken says learning more about these dynamics will help colleges and universities better understand how to get them back. 

“This is a good reminder that the core foundational need to stay enrolled is to have a strong sense of wellbeing.”

The latest report surveyed 6,015 currently enrolled students, about 5,012 Us adults who were previously enrolled in an education program after high school but had not completed a degree, and 3,005 adults who never enrolled in higher education.  The survey showed that about six in 10 Black and Hispanic unenrolled U.S. adults report they have considered enrolling in the past two years and that Certificate and Associate programs are most attractive to Black and Hispanic Americans.  

Marken sees this as good news and tracks it to 2019 Gallup research that showed that 66% of Hispanics and 65% of Blacks said that a college education was very important compared to just 44% of Whites.  

“All of this research is really aimed at figuring out how do we keep more of these individuals within higher education – those who want to be in higher ed and who perceive it to be a highly valuable experience — so they don’t stop out temporarily or permanently.”

Filling the Research Gap on Student Health and Wellbeing

Last August, as Kent State University students were busy reconnecting with friends and settling into another year of college, professors John Gunstad and Karin Coifman were launching a research initiative that could improve their wellbeing and that of the thousands of students who come after them. The new Student Life Study is the largest and most ambitious investigation into the health and wellbeing of college students ever conducted. It will collect a high-dimensional data set on a group of 10,000 students and follow them throughout their lifetimes, providing real-time data on student mental and physical health. Gunstad and Coifman believe a study of this magnitude will eventually identify best-practice interventions, provide immediate access to health and wellness resources, re-structure university programming and decision-making, and even predict outcomes after graduation. 

“Our goal is to create a comprehensive understanding of what it’s like to be a modern-day college student in order to help them live happier and healthier lives,” said Dr. Gunstad. 

Longitudinal, population-scale research projects, like the Harvard Study of Adult Development, can provide a treasure trove of data as they follow individuals over the course of their lifetimes. But no studies of this scope and intensity have ever focused on college students. Dr. Karin Coifman is a clinical psychologist whose research focuses on following people over extended periods of time, particularly through stages of stress—including normative, developmental stressors like the transition into college. Dr. John Gunstad is a clinical neurologist interested in tracking changes in the brain over the course of a lifetime. Their combined expertise is now fully dedicated to helping improve the overall wellbeing of college students by looking at all the contributing factors – including mental and physical health, social belonging, academic and career success and equity and inclusion. 

An unmet need

The Student Life Study’s abstract states that “Current students represent a unique generation, the first raised entirely within the broader context of social media. Presently, U.S. colleges and universities do not have adequate resources to address this increased demand and existing surveillance and broad-scope interventional tools are limited. The Kent State Student Life Study (SLS) is designed to investigate complex and dynamical developmental shifts in psychological health and functioning in this generation of college students.” By understanding the unique social, cultural, and psychological challenges faced by these students, Dr. Coifman and Dr. Gunstad believe that universities can better accommodate their needs and support their development. 

A population-scale study of this magnitude and with this intensity of measurement has never been conducted on college students.

As Dr. Coifman explains, “college is a developmental period when the bad habits that drive many health concerns later in life are formed. There’s a shift that happens when kids leave home and come onto the college campus. They come with their history. They come with their risk. They come with their experiences and certainly patterns of behavior. But those things dynamically shift during the college years, and we don’t yet understand exactly how that occurs—which means we’re not very good at intervening.” 

Both Dr. Gunstad and Dr. Coifman speak passionately about the research methodology and the rigor of the study. The Student Life Study aims to gather data on a sample of 10,000 college students—not only while they are on campus, but after graduation and throughout their lives. The research methods range from surveys and video responses to physical health assessments, the combination of which is itself precedent setting. The model of the study involves both tracking behaviors and testing methods of intervention, discovering what works in real time. When something works, the researchers will make it available without delay—an intervention found to be effective will be available to all students and continuously refined. 

The process of data collection is equally rigorous, agile and ever evolving. “To capture developmental processes, you have to use a dynamic model for research,” Dr. Coifman says. “It’s often called a measurement burst framework, where you do these fits of intense measurement, and then you wait, and then you do them again, and then you wait and repeat. We’re doing that within a platform that’s really comfortable for this population. We rely on a lot of remote assessment, such as surveys delivered through the smartphone, as well as a process called ecological momentary assessment, a technique that allows researchers to observe behaviors and experiences in real time.”

In the Student Life Study, this assessment takes place during one week of each semester, when students will report their behaviors and experiences 5 times a day for a period of 7 days. “We’ve paired these periods of ecological momentary assessment with passive biosensing,” Dr. Coifman explains. This means hardware and software integration, pairing survey data with health data collected by a Garmin device such as a Fitbit or Apple watch. 

The study has “enormous scientific potential,” Dr. Coifman explains, in part due to the scope and methods of data collection. A population-scale study of this magnitude and with this intensity of measurement has never been conducted on college students. It allows the researchers to make better, more nuanced scientific inferences. “There are lots of population-scale studies following individuals over the course of their lifetimes, but the intensity of measurement is gathering data maybe once or twice a year. We are doing continuous, intensive sampling, and we’re also collecting biological data that other samples haven’t.” 

Phase 1 of the study began last fall and involves measuring the health, social behavior and academic performance of 10,000 college students during their time on campus. Phase 2 will follow these same students after graduation, studying how their physical health, mental and emotional wellbeing, social and professional lives play out over the course of their lifetimes. The researchers will use information gathered in both phases to identify predictors of successful outcomes, develop effective interventions for issues like substance abuse or mental health concerns, and understand how students’ college years affect the rest of their lives. 

The ultimate goal of the Student Life Study is to work with university administrators and decision-makers at Kent State and beyond to implement resources and best practices based on the findings of the study.

“We’re trying to capture all domains of operations,” Dr. Coifman says. “We are, of course, interested in psychological states, but we’re also interested in basic biological functions. We want to know how people are sleeping, how they’re eating, how they’re moving; what their social networks look like and how they experience social connection.” Additionally, the researchers will collect data on difficult experiences in students’ lives—as well as how they think about those experiences, and how different ways of thinking about difficult experiences affect life outcomes. At the end of every semester, students complete a survey detailing the primary stressors they encountered, as well as completing a video prompt where they discuss those sources of stress. They use the same method to record positive experiences and achievements. The video offers a platform for narrative response and, importantly, a window into the way students think. 

“Often what people say is much less useful for predicting outcomes than how they say it,” Dr. Coifman explains, adding that “subtle things, like how people use words or how the syntax moves in their phrasing” can help researchers glean qualitative information about how they are processing positive or negative events and emotions. Beneath the content of what students say, the psychology of how they feel about what they are saying opens another world of interpretation. 

With this ambitious undertaking comes a tremendous potential for meaningful change. The ultimate goal of the study is to work with university administrators and decision-makers at Kent State and beyond to implement resources and best practices based on the findings of the study. Dr. Gunstad emphasizes that helping universities reallocate their resources to better serve students in an important benefit. “Universities have limited funds for programming to help students succeed,” he says, noting that much of that funding is misallocated to interventions whose efficacy is unproven. “If we can help universities be smart about how they use those funds, we can create better outcomes for students.”

The Student Life Study is funded by a competitive “Game Changer” award sponsored by the Division of Research and Economic Development at Kent State University, which provides internal pilot funds to research projects at the university. When Phase 1 launched in August of 2023, the Student Life Study had amassed around $450,000 in funding to cover the first two years of the study. Dr. Coifman and Dr. Gunstad are grateful for the university’s investment into the program, and they agree that Kent State is the ideal setting for an initiative of this size, scope and potential outcome. 

With nearly 35,000 students across 8 campuses, the university’s geographic spread includes both rural and urban campuses in Ohio. Additionally, more than a third of Kent State students are first-generation college students, and a longitudinal study could have meaningful implications for that population of students. “These are individuals who are the first in their families to make their way into college,” Dr. Gunstad says. “Being able to capture information on that group is critically valuable to their development, and also valuable to us as a country and a society.” 

Dr. Gunstad also points out that past longitudinal and life course studies have typically looked at populations on the east and west coasts. Kent State’s midwestern location means that the study will fill in what past research has missed: “flyover country,” as Dr. Gunstad affectionately puts it. 

Additionally, Dr. Coifman emphasizes institutional support as a crucial element to the study’s success. “The potential of the study is in the commitment of this institution to this project. We are reaping the tremendous benefit of many institutional resources. I suspect that lots of institutions are very concerned with the fact that it’s incredibly hard to meet the needs of students today, and they simply have inadequate funding available to do it. The gap between the need and the resources is just getting wider and wider,” she says. Institutional investment into the Student Life Study may eventually mean that those limited resources can be reallocated to better serve students at colleges and universities across the country.

To learn more about the Kent State University Student Life Study, visit https://www.kent.edu/student-life-study. 

Understanding Languishing and Flourishing with Dr. Corey Keyes

The following is a transcript of LearningWell Radio Episode 1: Understanding Languishing and Flourishing with Dr. Corey Keyes. You can listen to the episode on Apple Podcasts.

Marjorie Malpiede: This is LearningWell Radio, the podcast of LearningWell Magazine, covering the intersection of higher education and lifelong wellbeing. I’m Marjorie Malpiede, the Editor of LearningWell and your host today. Our first guest for our first episode of LearningWell Radio is Dr. Corey Keyes, the renowned sociologist and psychologist who has introduced groundbreaking work in the areas of flourishing and languishing. Welcome, Corey.

Corey Keyes: Hello and good morning.

MM: As a faculty member at Emory University, Dr. Keyes taught The Science of Happiness. He has a new book coming out called Languishing, and it’s actually available this week. Corey, let me say, I knew that you were a brilliant sociologist and psychologist, but I did not know that you were such a talented writer. Your book is really terrific.

CK: Thank you. I appreciate that. I take great pride in trying to write in a way that communicates the nuances and stories behind the numbers of our science.

MM: Well, I have to say that is exactly what my reaction was. I loved your opening, where you take us back to your teenage years and you’re listening to Jackson Brown’s “Running On Empty.” Loved that song. And of course, the reference to the King Biscuit Flower Hour. That was awesome. What a throwback. But the whole book is like that. It’s really very enjoyable to read. So anyway, big thumbs up for me as one reader, one reviewer, but let’s get into the book a bit and give a little bit of a preview for our audiences. First thing I’d like to ask you is, what motivated you to write this, Corey? You’ve been publishing for a long time, but this is really something special.

CK: Well, for a long time I’ve had a passion for advocating for better treatment and approaches to helping people with mental illness, and especially trying to get people invested in preventing it in the first place. Because I know we’re all on the same page when we hear again and again in the news that there’s a crisis in mental illness and that it’s growing. And the fact that I continue to hear about this crisis and that it’s growing, has led me to feel I’ve heard this enough, because the problem is nothing is changing. And I’ve waited and done the science for 25 years on promoting positive mental health in order to prevent, and I’ve felt that the science was solid enough, that there was enough there to write a book. And my dream is that this begins to encourage public health systems and systems like higher education, not the least of which I would also hope in public K-12 education, to begin thinking about prevention by promoting flourishing. So, my book is about trying to change the discourse and introduce another way to deal with the crisis of mental illness by promoting good mental health.

MM: Yeah, and it really does come across very loud and clear in the book. Reading it, it’s clear that it’s about the reader, so it will be about the person who could be benefiting from this information, but it’s also about all the sort of systems and institutions that influence what you describe as flourishing and languishing. I think my next question, for people who think they know the term but really don’t, I think commonly don’t, is how would you describe languishing? Because it’s not always what people think it is.

CK: No. And in fact, I think sometimes the simple descriptors don’t do it justice, because people will use the words either, “Meh,” which Adam Grant did in his New York Times op-ed, or “Blah.” And I don’t think those two terms do it justice, because I want to get back to the way I measure it, which is 14 questions that constitute measurement of the presence of good mental health, which I refer to flourishing, and languishing is the absence of some of these very important things. So to languish is not only to have lost a sense of interest in life or you’re not feeling happy or satisfied, but along with that, at least six or more things are missing in your life, like a sense of purpose, a sense that you’re growing as a person, a sense of self-acceptance that you like most parts of your personality. There’s some social components, like a sense that you are making contributions or you will make a contribution to the world or your community, a sense of belonging to a community, a sense of coherence, which is that you can make sense of what’s going on in the world around you. So, languishing is a constellation of things, but it’s the absence of functioning well, combined with the absence of feeling anything good or not feeling much of anything about your life. So in that sense, languishing is a lot more than just, “Blah.” It’s the absence of what makes life meaningful and gives you a sense that you matter and so forth.

MM: So, something you say in the book is interesting to me and it gets to that same sense of, do we really understand the language around this? So you say, “Don’t be fooled by feelings.” Explain that a little bit and how people may not understand if they’re languishing or flourishing.

CK: I think there is this obsession, and I think we in this country are particular leaders in the obsession with happiness, or what I would call the emotional part of flourishing, what I call the emotional wellbeing. This gets a lot of attention, and indeed, every year there’s what we call the World Happiness Report, which measures things like life satisfaction, “Do you feel satisfied or do you feel happy about your life?” And we rank countries based on the happiest and think they’re doing really well, and those countries that aren’t very happy. But flourishing is so much more feeling good. And I argue that if you focus only on and prioritize only feeling good, it will not be your North Star. ‘Cause I think of flourishing as my North Star because it’s what kept me in recovery from my own mental disorders of depression and PTSD, and it’s where I feel most at home. If you only prioritize feeling good without functioning well, you will not be doing well. And not the least of which is there are college students, a lot of them, about 20%, that would meet the criteria for flourishing in terms of happiness or feeling good, but they’re languishing when it comes to the criteria of functioning well. That means they have low levels of either psychological or social wellbeing, or both. And they have five times the rate of mental illness as those students who are flourishing. And by flourishing, I mean they’re functioning well. They have six or more of the criteria of functioning well every day or almost every day, combined with feeling good. So that in and of itself suggests that feeling good is not enough of a criteria or it cannot be considered a gold standard alone for doing well in life or even be considered mentally healthy. It’s not the feeling good, the feeling happy that’s really driving the benefits of flourishing, it’s the functioning well. Purpose in life, belonging, contribution, mastery, growth, and acceptance, all those good things that represent that we’re doing well in life. And so I always argue, put functioning well first and you will feel good about a life that’s meaningful and has substance.

MM: I think that’s so interesting because so many of us just think about the standards around feelings, happiness, or sadness, or excitement, or motivation, and we are not really thinking about the processes behind that. So that’s a really interesting way of looking at it. And is this really what you’d call your dual continuum model, that you can be mentally ill and mentally healthy at the same time?

CK: I review, in one of the chapters, an array of evidence that supports what I call the dual-continuum model, not the least of which is the research on the neuroscience of emotions. Now, I didn’t do this research, but I’ve reviewed it, and a lot of it is focused on negative and positive emotions, sadness in particular, and happiness. What they found in the brain is that sadness and happiness share some things in common when it comes to being activated in our brain, but they have a lot of distinctive things that go on. So when we’re feeling sad, the fact that they don’t overlap completely, meaning that when we’re sad, happiness isn’t completely downregulated in our brain, that’s not the case. We can feel both sad and happy at the same time, because they don’t share everything in common when it comes to activation in our brain. And I was writing about this very thing in my book when I realized that Susan Cain was about to publish a book as I was writing my book, and she wrote a book called Bittersweet. And I was writing about the fact that you can have bittersweet moments and feelings precisely because the brain is wired in the two continuum when it comes to just emotions. You can feel a little happy and a little sad at the same time. And on college campuses, I used to love teaching this particular part of my Happiness class during the spring semester when I had almost all graduating seniors. And as we got closer and closer to graduation, it became clear and clear that they understood this because they were feeling poignancy and bittersweet about their time at college and the fact that they now were about to leave it. They felt happy because they had accomplished something worthy of their effort and they felt sad because they were leaving behind something meaningful. So it goes much deeper than that. And mental health and mental illness belong to separate continuums. They’re correlated. But not correlated so strongly that the absence of mental illness means that you’re automatically flourishing. So, there is very strong evidence in a lot of that research I’ve done and done with colleagues, even at the genetic level, showing that we inherit two sets of genes. One set is what I would call risks, genetic risks for mental illness, and then there’s flourishing or positive mental health, which is also equally heritable as things like depression. But there’s only a modest overlap of the genetic variance or the genes for mental illness and mental health. So that means you can inherit a low genetic risk for something like depression, but the absence of genetic risk for depression doesn’t mean that you’ve also inherited a high genetic potential to flourish. But it also goes the opposite way, Marjorie, you could inherit a high genetic potential for depression, but you could have also inherited a high genetic potential for flourishing. And we now know that genes alone do not determine our outcomes. It requires environmental activation of a lot of our genes. So as I like to say, when you’re in that situation where you’ve inherited high genetic risks along with high genetic potential, you ask yourself the version of the negative wolf and the bad wolf, which one wins? The one we feed. Right? So there’s very strong evidence of the dual-continuum model, and that makes the case very strongly that even if we could find a cure, and we’re not anywhere close, even if we could cure all mental illnesses tomorrow, it wouldn’t necessarily mean everyone’s mentally healthy, and we could have just left them in another equally bad condition, languishing.

MM: So, Corey, let me just say, what I love about your work is that it gives people hope, and it looks at these issues in a way that not just destigmatizes them, which you’ve done, but also allows people to give themselves a bit of a break around this. But let’s talk about Languishing and why you wrote this, because so many people are languishing. And you talk about the pandemic and how that obviously accelerated these issues, but also, they weren’t the cause of them. In fact, I think one of the things you say is, because we were sort of sliding into languishing, it was harder for us to be resilient to what happened in the global pandemic, if I got that right? But let me ask a few questions again about the mental state and how people can get out of it. So you talk about why languishing is really a risk to your mental and physical health. Can you talk a little bit more about that?

CK: Sure. In fact, I list at the very beginning a lot of evidence that supports, I call it the 13 reasons why you want to take languishing very seriously, and why we want better mental health and flourishing. Not the least of which I haven’t focused as much on physical health, there’s a little evidence I review when it comes to aging, but the one in particular that really stood out for me is this very strong body of evidence that has to do with what’s called the conserved transcriptional response to adversity. Not my words. That’s the words that some biologists and geneticists gave to this genetic propensity we all have. And the CTRA is activated when we experience adversity, and it’s not healthy for us, because when that CTRA, forgive the abbreviation ’cause it’s a lot to say, is activated, it downregulates antibody production, which is not good. We want antibodies for our immunity, immune responses. So when the CTR is activated, antibody production is suppressed and inflammation is accentuated or activated. Again, inflammation in and of itself is not good for us. And so researchers have been looking for things that actually buffer, mitigate the CTRA when we are experiencing adversity. And here is the amazing thing about the distinction between feeling and functioning when it comes to flourishing. Feeling happy and satisfied has no relationship to modulating the CTRA, but when you have higher levels on functioning well, that is, that goes into my measurement of flourishing, higher levels of particularly psychological wellbeing, people then have a much more modulated or controlled CTRA response. It means that if you are functioning well and you are experiencing stress and demands and adversity, you are protected against the CTRA. And if you aren’t functioning well, higher psychological wellbeing, the CTRA is activated very strongly when you experience adversity. So that’s just one very strong physical underlying genetic /physical response. It’s deeply connected to the functioning well part of flourishing, not the feeling good.

MM: So, if I’m understanding this correctly, it’s almost like you can strengthen your flourishing muscle, so to speak. Right? To have some of what is happening in terms of the languishing and the conditions and elements around that, you can influence or even prevent it. Correct?

CK: Yes. In fact, there’s two studies I reviewed that I just love, one of which is in the work. And you can think of college, a university setting in the same way you can think of a workplace. And this particular study was done in Australia, and they asked workers, “Yes or no, are you currently working in a high stress or hostile, if you will, work environment?” That was the beginning of the study. And then they measured psychological distress over time, and they measured at time one their level of positive mental health. What was remarkable, is over time, if you were flourishing, working in a high stress or high conflict work environment did not result in any more distress than compared as those who are working in a low stress, low conf environment. But if you were languishing and working in a high stress and high conflict work environment, you had a markedly higher increase in distress over time than if you were flourishing. So flourishing in the work settings protected you from having stress and conflict undermine your mental, emotional life. And then there was this second study that I reviewed that followed people over a three-week period and every day asked them whether they had experienced any of several sources of stress, things like the typical sources of stressors, like there’s conflict at work, you had an argument with your boss or your spouse or your friend and so forth. What was amazing about this study, was if you were flourishing, you experienced the same amount of sources of stress as those who are languishing. And in fact, in a three-week period, 84% of the days of those three weeks were filled with sources of stress. So most days. You only had three days out of the three-week period where you didn’t have any source of stress. So everyone was experiencing stress, but then they measured negative mood that day. And here’s the remarkable thing, if you were flourishing and you experienced source of stress, you’re much less likely to have negative mood as a result of it compared to those who are languishing. If you’re languishing, those sources of stress resulted in a much more negative and foul mood at the end of the day than if you are flourishing. So it’s not like if you’re flourishing, you don’t have bad days, you have as many bad days, if you will, or sources of stress at least as those who are languishing. But again, there’s something about flourishing that protects you from having bad things really result in bad feelings. Again, we don’t know why, but then again, I go back to the following thing. Did we not need to know how smoking caused cancer in order to prevent cancers from smoking? No, we just needed to know that smoking caused cancer. And here, I’m not so interested in how flourishing protects us, just that it does, and we need more of it in our students and we need more of it in our lives, in the workplace.

MM: So Corey, I’m completely convinced that flourishing is the goal, and I think to learn how to get into that state of flourishing is part of what you do in the book, and I want to get to that. Am I correct in saying that there are kind of two elements here to unpack? One is, and I love that you do this, you talk about in your book the propensity for society to consider whether you’re languishing or flourishing to be a matter of personal responsibility. It’s either you do it or you don’t, and it’s all about you. But you do point out that many times our systems are failing us. Can you talk about that in the context of higher education?

CK: I couldn’t help but be the sociologist because I’ve been living a lot of my life in both in psychology and sociology, and I’m amazed the amount of work that’s been published in positive psychology, and psychology in general, that simply ignores the power of context and institutions and culture and values and so forth. And so it was clear to me. I talk about my own personal experience. Before I was adopted at the age 12, things were horrible for me. And I was going in one direction and it was in the wrong direction. I was in detention more than I was anywhere else after school, and I was not doing well and so forth. And when I got adopted into my grandparents’ home, it was a 180 degree change, and it was remarkable to see and I still marvel at it. I went from being in detention to honor roll student, every semester, to quarterback of the football team, playing basketball, in the choir. Something in me changed, but it was because I was transplanted in a place where I could flourish. And so I knew that was the first time I experienced flourishing. And in my dedication to my book, my whole book was dedicated to my nana and papa, who when I experienced that, they gave me the seeds of flourishing because I never forgot that. And so it’s clear to me that people are really struggling, even people in high-level professional jobs like medicine. And I write about one op-ed that just floored me, but this was not the only doctor who’s lamenting the fact that they’re having to work in a, they call, a corrupt, profit-driven institution that’s demoralizing them. Because they have to cut corners and they can’t do the things that they want to do and need to do as doctors to help their patients because hospitals are sitting on massive profits, but they’re cutting corners. And what’s happening to people is they can’t live their values. And when that happens, when they’re demoralized, you start to destroy the person that came to you with values and dreams of using their work to do good. And when you prevent people from doing and living their values to do good things through their work, you begin to destroy them. And that’s what languishing is often described as, “I’m dying inside,” or, “I feel dead inside.” Now, I won’t say that higher education is doing the same, but I do worry that, I think, there’s a lot of, well intentioned leaders, people who want students to find purpose and live their values, but I saw this firsthand, we’re grooming our youth to value one thing, money and power, by everything is boiled down to grades. And I know you’re going to say, “Well, what do we replace grades with?” But grades are all that matter because that’s all that matters to us. And at first, I was frustrated as a professor. I would’ve kids coming into my office crying because they had an A minus or a B plus. Something is wrong with what we value in higher education.

MM: LearningWell Magazine examines the intersection between higher education and lifelong wellbeing. So not just how we experience college and what happens to our mental health at college, but how college influences our wellbeing over time and over your lifetime. So obviously, it is a great conversation for anyone who cares about any of those issues. Not to put you on the spot in terms of specifics, but if flourishing is the end goal for our students, and we’re faced with the mental health crisis that we all know and are working hard to address, shouldn’t we, and what could we be doing to really try to promote flourishing on college campuses?

CK: Well, the second half of my book talks about what I’ve come to call the five vitamins for flourishing deficiency. And those five activities that flourishing people do more of than people who are languishing, which is they prioritize some form of helping others. They prioritize learning something new and growing personally, they prioritize spiritual or religious activity, they prioritize socializing or connecting warmly and belonging, and they prioritize play. Now, those five things I was just thinking about this morning before we got on, and it occurs to me that you would think that those five things are already happening on most college campuses, maybe not as much play, but wouldn’t you think every day a college student learns something new and sees him or herself growing? And I see it that college students connecting and socializing every day, not everyone perhaps engages in spiritual or religious activities, but many of them do and so forth. My question becomes, if many of the students are doing those five things already, but they’re not flourishing, what is it about colleges that may prevent those five activities from being as beneficial as they could? ‘Cause they are for adults who aren’t in college or who are after college. And I wonder sometimes if it’s just that students, like many of us as adults, would read a book like this and say, “Well, let me fit in some of these things in 5 or 10 minutes of my busy day or my busy week.” And I didn’t write it that way. In fact, I was sometimes encouraged by people around me saying, “Well, just tell people what they can do in the 10 minutes they have if it’s a typical day or a busy day.” And I was like, “No, I’m not going to do that. That’s not the way this works.” Because people who were really benefiting from those activities did more of it in that day. They helped more. They didn’t just help someone. They engaged in more helping behavior that day and they had a much better day and they stayed flourishing. And if they were languishing, or in the study, there were some people who were depressed who did more of each of those vitamins. And they didn’t have to do all five, by the way. They just picked one and they did more of that day. Even if they were languishing or depressed, they had a better day. And over time, they moved away from languishing or depression, and inch by inch closer and closer to flourishing over time. So those five activities aren’t things to just do as a sort of 5 minute or 10 minute exercise, like breathing or taking a couple deep breaths, or meditating for a minute and quieting your stress response. These are things that have to become important parts of each day. And that’s why I’m convinced, even if people on college campuses or administrators read the book and say, “Wow, I think most of my students are doing these five things, or at least three out of the five, but they’re not flourishing.” Well, it’s because their priorities are much more related to one thing, study, study, grades, grades, degrees, degrees, and the next step.

MM: So it’s almost like if institutions, colleges, and universities really made flourishing their North Star, that would really change the conditions by which students could be working to engender their own flourishing. Would you say that’s right, Corey?

CK: Yes. I could imagine a university prioritizing and measuring this and taking it just as important as GPAs and resumes, and that they prioritize those five vitamins to such a degree that they counted in the same way that taking a class is given credit and you get graded. ‘Cause that’s the one thing I learned, if students don’t get credit, they don’t think it’s important because they infer the institution doesn’t think it’s important. And so somehow, I think we need to teach these things and value them to the same degree, and measure them and monitor them in the same way that we monitor grades and provide that. And my dream, as I said in some of my writings, as when a student walks across that stage to get their diploma, we can tell them, to the same degree, that their flourishing has grown as a result of being here to the same degree that their knowledge and GPA reflects their learning. When that happens, I’m convinced students will get the message. They will learn about their own wellbeing, their own mental health, and what it means to them that the institution values it as much as they do, and that this is what you’re given as your journey through adulthood from this institution. Not just a degree, but a sense that your wellbeing is something you need for this journey.

MM: That’s awesome. So Corey, we have learned so much today, and obviously I would encourage our listeners to read the book and learn even more. When you think about all of the important messages here, who would you say you wrote the book for?

CK: Well, you will notice that this is part memoir because my research was, as I said, me-search for a better way. And I wrote this, forgive the phrase, but it’s part of my heart, for all of the lost souls. And there are many of us, and I think many of us are lost without knowing it. And there is this poem I want to read to you, this is why I wrote it. And it’s a poem written by Athey Thompson, and it’s taken from her book, A Little Book of Poetry. And I wish I’d seen this poem before I finished the book because it would’ve been the way I ended it, but here it goes. “I shall gather up all the lost souls that wander this earth, all the ones that are broken, all the ones that never really fitted in. I shall gather them all up and together we shall find our home.”

MM: Well, that needs to be the last words for the interview. That was amazing, Corey, and I thank you so much. So, we’re talking to Dr. Corey Keyes. His new book will be out at the end of February, it’s called Languishing, and it will be an important experience for anyone who reads it. Corey, we are so excited that you came and talked to us today and shared all of your wisdom. I am so grateful. Thank you so much.

CK: Thank you for having me.

Ian Elsner: This has been LearningWell Radio, a production of LearningWell, for more information about our work, go to learningwellmag.org. And if you like what we’re doing, leave us a rating or review. LearningWell Radio is engineered by me, Ian Elsner. Thanks so much for listening.

Mindfulness: Coming to a College Near You

Around the turn of the century, psychiatrist Holly Rogers noticed an emerging trend among her student clients at Duke University. Many of them were coming into the student counseling center with a variety of mental health problems driven by what seemed to be a lack of resilience; an inability to sit with discomfort, distress or disappointment. She concluded that helping her students develop the coping skills needed to confront these emotions would lead to a myriad of benefits, including alleviating what would soon grow to be a capacity crisis at college counseling centers across the country. 

Nearly a quarter century later, Rogers’ professional observation has become a personal mandate to help address some of what today’s college students are struggling with – including anxiety, depression and loneliness. She is even more convinced today that practices such as mindfulness can help many college students regulate their own wellbeing in a world that has only become more stressful. She and her colleague, Libby Webb, the former associate director of counseling and psychological services at Duke, founded the Mindfulness Institute for Emerging Adults (MIEA) to bring the evidence-based program in contemplative practices developed at Duke to colleges and universities around the country.

“Something more has got to be done,” said Rogers, MD. “There needs to be a top-level paradigm shift to change the culture on our campuses so we don’t have academic success over here with all its metrics and then ‘here’s a few things we do for wellness.’”  

Rates of anxiety and depression reported by college students have been on the rise for more than a decade, and the responsibility of addressing the crisis has been largely laid at the door of college counseling centers. But capacity problems have coincided with a growing recognition that subclinical emotional issues can and should be addressed by opening up the circle of care on campus, and that combatting the college mental health crisis requires adding a preventative, public health approach, along with a treatment response. Enter mindfulness. 

Holly Rogers, MD
Libby Webb, MSW

Like many ubiquitous terms, mindfulness could stand to be better explained before it can be fully embraced. Based on age-old contemplative practices found in most religions, notably Buddhism, mindfulness is defined as a mental state achieved by focusing one’s awareness on the present moment, while acknowledging one’s feelings, thoughts, and sensations. Its broad appeal in today’s frenzied world is its ability to calm the mind through practices such as mindful breathing, meditation, body scans, and intentions of gratitude. 

“Mindfulness is the skill and capacity to bring our minds to the present as opposed to galloping towards the future or dwelling in the past,” said Webb, MSW. “And doing so with a non-judgmental awareness of where our minds tend to go. You just notice it and bring your attention back to the present.”

Mindfulness has become a big business, complete with YouTube channels and celebrity endorsements, and it is clear the practice can work for people of any age. But Rogers and Webb believe it is particularly beneficial for emerging adults: traditional college-age students who are navigating emotional land mines such as test anxiety, social media-induced self-doubt, and vulnerability to substance use. “What we know about this developmental stage is that it is filled with ambiguity,” said Webb. “‘Who am I? What do I care about? Who am I going to love?’ And we know that the brain doesn’t like ambiguity. It detects a threat, so it’s a time of high unease.” 

Webb says that because their brains are still fluid, young people are more adept at flexing into other patterned behaviors if exposed to them. Skills-based practices like mindfulness can calm their brains, which helps them make better choices, examine their purpose, and identify what is important to them. In 2023, the American Council on Education strongly endorsed mindfulness programs with supervised practice in its report, “What Works for Improving Mental Health in Higher Education,” adding to a strong body of evidence already in the literature.

“Research is showing us more and more that this capacity to be in the moment reduces suffering and improves attention,” said Webb.

For several years, Duke offered the program developed by Rogers and her colleague Margaret Maytan, MD, in the form of a four-week, opt-in course, involving a teacher and group discussion.  While it was slow to catch on, it eventually took on waiting lists. They called it Koru, a Maori word used for an unfurling fern frond symbolizing stability in the center of unfolding growth. With refinements to the curriculum over the years, they began an effort to assess its effectiveness in 2012. The results of its randomized controlled trial were published in the Journal of American College Health and became that publication’s most downloaded article in 2014, around the same time the Healthy Minds survey showed a solid upward trend in mental health problems among college students. In the trial, students who had taken Koru reported a reduction in stress, an increase in restfulness, and a greater sense of self-compassion, among other findings.  

Skills-based practices like mindfulness can calm their brains, which helps them make better choices, examine their purpose, and identify what is important to them.

Interest in practices like Koru on college campuses has grown steadily since then, motivating Rogers and Webb to leave their positions at Duke to focus full-time on expanding the program through a “train the trainer” model. Individuals from other universities began coming to the center, recently renamed MIEA, in Durham, NC, where they receive training to become MIEA-certified teachers and then go back to their campuses and offer the courses in a variety of forms. 

Since the pandemic, MIEA has offered the certification program online, which has accelerated the number of schools and individuals participating in the program. Rogers said that MIEA has now trained 1,500 teachers in 14 different countries and taught over 70,000 students. Institutions range from the Ivies to community colleges. You don’t have to have a clinical background to become a MIEA teacher, only some background in contemplative practices. If you don’t, they will help you cultivate one.  

MIEA’s first non-Duke client was Harvard University, which continues to offer a variety of classes each semester and has 12 MIEA-certified teachers within its Center for Wellness and Health Promotion. “I have been teaching MIEA classes for over 10 years,” said Amanda Ayers, MPH, Harvard’s Director of Health Promotion. “It is such a joy to see the changes that students make in just four weeks. They are able to be more present in their everyday lives, spend less time on social media, and are kinder to themselves.” 

How mindfulness practices are taught and who chooses to teach them illustrates their versatility and low barrier to access. In an environment as siloed as a college campus, mindfulness curriculum like that offered through MIEA can weave through departments and requirements – a credit-bearing course here, an elective there. Mindfulness teachers are often connected to traditional fields like health promotion but can include anyone in any discipline who sees the value of improving student wellbeing. Evidence on the connection between mindfulness and attention attracts professors and academic advisors worried about student disengagement and burnout.

“You can embed this curriculum into your first-year seminars, your physical education classes, or as an extra credit elective,” said Rogers. “We have faculty in business schools who are offering the curriculum in conjunction with their academic material.”

The individualized nature of the MIEA program is both an advantage and a challenge. The curriculum, which comes with an app and a teacher dashboard, takes different forms at different price points. To date, MIEA’s business model is to sell the program to individuals within schools such as faculty or staff working in the wellness center who might use professional development funds to pay for it. Rogers points out that this case-by-case model lacks the consistency and traction needed to make mindfulness a universal benefit. Professors get busy. Funds dry up. The team is now offering the MIEA program directly to institutions at a much larger scale, hoping the urgency of student mental health will spur a university-wide commitment to wellbeing.  

“We’re asking universities to make a commitment both to us and to their teachers if they want to really make a difference on their campus,” said Rogers.  

Mindfulness in Action

Eric Teske directs the Office of Health and Wellness Promotion at Indiana University, Indianapolis. His interest in the MIEA program came from his desire to “take pressure off of the counseling center” by offering a program that could be taught by trained teachers to students who could be helped in non-clinical contexts. After hearing a presentation by Libby Webb during the pandemic, Teske was determined to get a number of people on campus trained and certified through MIEA. Making it a free professional development opportunity was an added incentive. He funded the trainings through a grant from the state’s Division of Mental Health and Addiction.  

“In helping students understand their own thoughts and feelings, we are equipping them with self-regulatory skills, self-management, and that is all part of alcohol and drug prevention,” said Teske, MS, CHWC, who urges institutions in other states to explore the use of similar public funding.

The person who brought Libby Webb to IU was Nancy Barton, MS, a senior lecturer in the School of Health and Human Sciences’ Department of Kinesiology. With a background in meditation, Barton had been interested in becoming MIEA certified but didn’t find the time to pursue it until the pandemic,when the online option provided an opportunity — and even more students were reaching out for help. 

“Once I got it [the certification], I really wanted to work with my university to see it take off,” she said.  “So many people would say to me, ‘I am really worried about the mental health of my students, but I don’t know what to do.’ Now I could say,‘here’s something you can do.’”

Teske and Barton were part of the university’s Wellness Coalition, an ad hoc group of wellness enthusiasts who informally met to strategize about tactics to use on campus. Another member was Lisa Angermeier, PhD, MCHES, a senior faculty fellow in the Institute for Engaged Learning, which focuses on first-year experience and high impact practices. Together, they led an effort to embed the MIEA curriculum as a pilot program into selected sections of the first-year seminar. Now, the course is not just a credit-bearing option in the Department of Kinesiology, but a required course for first-year students.

“We wanted to offer students more tools, right from the beginning of their college experience to help them deal with the stress they will encounter,” said Angermeier. “But we also see this as something they can take with them and use for the rest of their lives.” 

An assessment of the program indicates that 62% of the first-year students found the program to be valuable. The team considers this statistic a positive outcome, considering that students do not opt-in to the program. Requiring mindfulness courses is a matter of debate among experts, with some saying it takes away from the self-agency of the practice, but Angermeierviews it as a way to plant a seed of self-care, even for those students who may be reluctant. Equity was another driver. 

“Oftentimes with opt-in programs, we see that the students that get there first come in with more social capital while those who lag behind lose out,” she said. “These are the students who often need it the most.”  

Valencia College in Orlando, Florida is also utilizing the MIEA curriculum. One of the largest, multi-campus community colleges in the country, Valencia is diverse, both in terms of its students and in the broad range of developmental stages in which they come to campus. Marcia Roman, EdD, ThM, is a counselor and faculty member at Valencia, where she and her colleagues do case management-type work, connecting students to clinicians when necessary and providing workshops and skills-based training. She said the MIEA curriculum “blended beautifully” with their model.  

“Our students can learn basic skills that you might even describe as mechanical – like how to breathe in a way that activates the parasympathetic nervous system, which will calm them down – but it’s more than that. For some, it has been life-changing. With mindfulness, they can move through the difficulty in their lives as opposed to all the manner of ways we try to bypass it. And they can do so without tremendous cost and with little risk.”  

The accessibility of mindfulness is one of its biggest selling points and something Rogers and Webb are promoting before potential higher education clients. Vivien Roman-Hampton, MSW, LICSW, is MIEA’s new Director of Outreach and Teacher Development. Part of her job is encouraging MIEA teachers to become trainers with a particular focus on bringing in people with diverse backgrounds.  

Roman-Hampton believes that when colleges and universities offer these services to students of all backgrounds and abilities, it says to them, “We see you and we want to support you.”

“My focus is on ensuring that the practices are accessible to anyone who isn’t what we would call ‘mainstream,’” she said.

Her interest in MIEA is personal. A clinician who works with clients from marginalized communities and is from one herself, Roman-Hampton was drawn to MIEA’s work because of its low cost and long-term benefit. “So much about self-care costs money, and that becomes a barrier to people,” she said. But Roman-Hampton initially questioned the lack of diversity among the training staff, which she said would be an issue for her clients. When she expressed her concern to Rogers and Webb, they encouraged her to help diversify the practice, and she joined them officially two years ago.    

Roman-Hampton believes that when colleges and universities offer these services to students of all backgrounds and abilities, it says to students, “We see you and we want to support you.”

Asked if mindfulness programs offer a particular benefit for marginalized groups, she said, “I think the practice allows us to sit with things that might be really difficult — like how the world sees us versus how we really are. And while we can most definitely work to create change, it is also exhausting, and not everyone will change as a result. But that doesn’t mean we have to keep absorbing it the way we have historically. Mindfulness is a way to sit with suffering but not let it destroy you.”

Loss, Grief and Homework

Listen to this story:

When Joey left his hometown to attend a prestigious out-of-state university, his mother was in hospice care for a rare sarcoma, a terminal cancer affecting the body’s soft tissues and bones. Two weeks into his freshman year, her nurses warned the family that Joey’s mother was in the final days of her life. Joey returned home, and his mother died the next day.

Joey’s mom had encouraged him to go to college, find community, and engage academically and socially with his campus. In the wake of her death, he no longer knew what that looked like. Joey went back to school one week after losing his mother, uncertain of his options and fearing the academic consequences of missing classes. When he emailed a dean at his university to explain his weeklong absence, an administrative assistant wrote back, asking Joey to provide a copy of his mother’s obituary.

“I didn’t want to dig myself into a deep hole in my first semester,” Joey says. “My university didn’t really know what to do with me, so I went back after a week. That’s when things really started to go downhill.” He describes feeling “indirectly rushed” to return to campus, having no knowledge of the university’s academic accommodations or leave policies. No one from his university’s administration reached out to make Joey aware of his options for support in or out of the classroom. He did not know until his second semester, after months of depression and isolation had taken a toll on his transcript, that he could have been graded on a Pass/Fail basis, allowing him to proceed with a clean slate. 

“My grades were very poor,” he recalls. “I had no study habits whatsoever. Seeing my GPA, seeing that it didn’t reflect the kind of student I am, it just made me more depressed. And then socially, it also took a huge toll. I was living in my dorm room most of the time.” Watching his grades drop over the course of his first semester, Joey says, compounded the cycle of anxiety, overwhelm, and pain—but what choice did he have? Without clarity on his university’s policies on grief and bereavement, Joey believed his only option was to keep going, soldiering on through the daily slog of academia, held to the same standard as his peers.

Death is a sensitive subject even for family and close friends, often leaving us at a loss for words, choosing to say nothing for fear of saying the wrong thing—so how should a college or university respond when a student loses a loved one? That question, at once ethical and practical, is the driving force behind UGrieve, a new initiative by the Parmenter Foundation designed to help colleges support students as they navigate the loss of a loved one while balancing academic and social commitments at a time when they may be living away from home for the first time. 

Established in 1949 as a provider of medical care in MetroWest Massachusetts, the Parmenter Foundation offers end-of-life and bereavement programs, resources and education, as well as grant funding for other nonprofits that provide services such as grief support groups for all ages, guidance for educators, and hospice care. The foundation launched UGrieve with interviews of three college students who describe feeling isolated, disoriented, and unsupported while grieving on campus.

Video provided by the Parmenter Foundation.

“Our understanding, based on anecdotes from bereaved students, parents, and also counselors and administrators, is that higher education institutions do not have systems, policies or protocols in place to support students who have experienced a death in their family,” says Angela Crocker, Executive Director of the Parmenter Foundation. “It seems colleges and universities can be accommodating to students who are grieving, but only if the students know what to ask for and whom to ask.” 

The confusion and ambiguity that accompanies students reentering campus life after losing a loved one is an additional stressor for grieving families. “We’ve talked to moms who have lost a husband who say, I’m grieving. I’m in shock. And then my son needs to go back to school, and I feel like I’m sending him into a black hole, and nobody’s looking out for him,’” says Jennifer Siegal, Communications and Programs Manager at the Parmenter Foundation.

The fear of sending a student back into a “black hole” of grief and bereavement protocol is far from unfounded, as Joey’s experience lays bare. Colleges tend to be pro-active only when a death (usually of a student) occurs on campus, assuming that what happens at home falls outside their institutional responsibility. As a result, according to Crocker, bereaved students are not only emotionally gutted, but often left feeling pulled between family and school obligations. 

“Colleges and universities can be accommodating to students who are grieving, but only if the students know what to ask for and whom to ask.” 

Joey’s older sister was their mother’s primary caretaker while their dad worked, he says. She made the preemptive decision to take the entire fall semester off from school, because she did not know when her mother would pass away. Joey describes feeling torn, longing to be at home to grieve with his loved ones but fearing falling behind in his academics. He reminded himself that his mother had encouraged him to make friends and “make his mark” on campus, something that seemed impossible as he struggled just to stay afloat.

“When college students have to confront the loss of a family member, they are immediately pulled between their two worlds of school and family life,” said Crocker, who noted the chasm is even wider for international students. “This pull is aggravated by geographic factors, multi-faceted academic demands, and oftentimes by the uncertain timeline at the end of their loved one’s life. No one is prepared for this. Colleges and universities need to understand this painful dynamic and provide balance and support—not demands—to students who are grieving.” 

Another barrier is the disconnect around bereavement and mental health support on campus. Siegal and Crocker emphasize that bereavement is a component of mental health, yet as colleges have increased cultural awareness and attention to mental health, grief and bereavement have been largely excluded from the conversation—despite the fact that the death of a loved one is correlated with a higher risk of depression, anxiety, post-traumatic stress disorder, and compromised physical health due to chronic stress.

How to Help

Colleges and universities do recognize the need. According to Siegal, administrators and decision-makers in higher education have expressed uncertainty surrounding best practices—they, too, operate in the dark, without a clear, universal protocol for students. “We saw that there was a demand for support in this area,” Siegal says, “so we started to put a program and initiative together. We interviewed students and created the video just so people could see that there really is a case for this work, and data show there are hundreds of thousands of students losing a loved one each year. This is not a small problem.”

“When college students have to confront the loss of a family member, they are immediately pulled between their two worlds of school and family life. Colleges and universities need to understand this painful dynamic and provide balance and support—not demands—to students who are grieving.”

The UGrieve program provides data and information about bereavement and makes recommendations to colleges on how to “build compassionate campuses” through policy changes. The UGrieve program urges colleges and universities to implement a “point person” to inform students of their options, communicate with professors, and coordinate accommodations as needed. The point person, she says, would ensure that grieving students will not be forced to make hurried decisions about their academic futures without full knowledge of the school’s policies and the resources available to them. “College students who have suffered a loss experience a sense of grief and isolation that inhibits them from navigating their classwork, effectively communicating with professors and accessing even the resources that are readily available on campus,” says Crocker. “Colleges and universities can overcome this disconnect by assigning a single point of contact to guide a grieving student on every accommodation available to them.”

Additionally, Siegal says, universities can implement training programs for faculty, staff, and students to make it easier for them to approach conversations with people who have lost loved ones. “It can be awkward,” Siegal acknowledges. “If someone brings up the death of a loved one, a roommate or professor won’t always know what to say.” Trainings and educational resources, she says, can create a grief-ready campus. The UGrieve mission is to “build compassionate campuses” where bereaved students are not neglected as they struggle to navigate classwork and social lives in a time of grief. On a compassionate campus, faculty will be better prepared to accommodate students who lose a parent, caregiver, or sibling. Bereaved students will have a point person to direct them to campus resources. Roommates and friends will be better equipped to recognize signs of isolation and depression.

UGrieve suggests that the first step to creating compassionate and informed campuses is to include grief and bereavement in conversations about mental health, including legal conversations. In 2023, several U.S. senators, including Massachusetts’ Edward Markey, introduced the Student Mental Health Rights Act, which would require the Department of Education to issue guidance to institutions of higher education to ensure compliance with federal law on mental health disabilities. But for some students, there is a glaring gap in the legislation: “It mandates colleges to provide accommodations for students who have anxiety, depression, substance use disorder, and they don’t include bereavement,” says Siegal. “So we’re working to compel them to include bereavement in the legislation. The accommodations they are proposing for supporting students with mental health struggles are very similar to what we are recommending for students who are grieving.”

With advocacy and hands-on resources, the Parmenter Foundation hopes all colleges and universities will examine the strength of their bereavement programs and consider them an important part of creating compassionate campuses.

After his mother was diagnosed with cancer, Joey says, “She fought till the very end. She wasn’t willing to give up or back down without a fight. It’s still a huge inspiration. When I’m thinking about giving up, or when I’m at my lowest point, I always think: What would my mom say? What would my mom do?

When Joey returned to school for the second semester of his freshman year, he arranged a meeting with the dean of students and the dean of the business school. He described his experience, telling them that it was the experience of many students who were suffering in silence, not knowing where to turn for help. He says the deans listened: they wanted to do better. They listened to a student who had felt neglected, left to fend for himself—and they took his suggestions seriously, proposing new protocols for grief support with the goal of making campus resources clear and accessible to all students.

Now a finance major with a minor in economics, Joey has cultivated a sense of belonging and hope on campus, living a life beyond his dorm room. “I don’t hate this school,” he says. “I love being here. It’s a great fit for me. I just wanted to make it better.” He has worked with UGrieve to build a compassionate campus for future students, who he says he hopes “will be treated the exact opposite” of how he was. For Joey, a compassionate campus is one where students can spend time at home to grieve with their families, knowing that they will be accommodated and welcomed back to campus; where students know who to reach out to and where to go for help; where professors have built-in procedures to grant extensions and forgive missed work when a student loses a family member or caregiver. And a place where an administrator will be less likely to ask a student for his mother’s obituary as proof of death.

To learn more about UGrieve, visit https://parmenterfoundation.org/ugrieve/.

Questions and Answers with Dr. Zainab Okolo

In May of this year, Dr. Zainab Okolo became Senior Vice President of Policy, Advocacy, and Government Relations at the Jed Foundation, the nation’s leading nonprofit that protects emotional health and prevents suicide for teens and young adults.  It was not just a new job for Okolo, who had previously led the Lumina Foundation’s work in student mental health, it was an inaugural position for the Jed Foundation which has moved from being a memorial initiative for a beloved son to the leading suicide prevention program in college mental health, to a national and international advocate for wellbeing strategies that support young people.  The arrival of Okolo signals both the rising importance of external policies in youth mental health and college mental health, and the organization’s own expansion into public affairs. 

When Okolo, Ed.D., LCMFT, who is a licensed therapist, led Lumina’s student mental health portfolio as a strategy officer,  she designed and established the foundation’s mental health partnerships and investments while advising key stakeholders, including the U.S. Department of Education (ED), the U.S. Department of Health and Human Services (HHS), the State Higher Education Executive Officers Association (SHEEO), the American Council on Education (ACE), and the Steve Fund.

She will now lead JED’s growing Advocacy and Government Relations function, leveraging key relationships with external networks to strengthen the organization’s national and state-level presence in advocating for new federal, state, and local support for a comprehensive approach to mental health and suicide prevention. Okolo led the Jed Foundation’s first policy national summit in October of this year which resulted in the foundation’s new Youth Mental Health Policy Strategies.

LW: This was a big move both for you and JED. How do you feel several months into the job? 

ZO: Oh, it feels full circle. I feel very fortunate as a marriage and family therapist for over a decade and having worked in higher education and those finding those two passions intersecting  – — I feel very lucky. I’ve only been with Jed now for six months and we’ve made some incredible strides, but as I tell my team, I’m building on 20 plus years of just fantastic work that JED has done with institutions, with high schools, with other private sector entities so I’m building on a very solid foundation and I feel very fortunate to have this ground to build on. I also feel really energized that there’s a constant sense of urgency when it comes to mental health work and advocacy; when you’re watching the data, when you’re watching the news, when you’re specifically focused on youth, there’s always a sense of urgency. There’s always a drive to create the solve sooner rather than later. Because what our suicide trends and rates are telling us is that there is an urgent need.  And for me, for as long as my career and time will allow, my goal is to create impact and change to bring suicide to zero. And I’m glad that I work at an organization that also has that as its North Star mission.

LW: The new position signals an expansion of JED’s work.  Do you feel this was a natural evolution? 

ZO: I do think that the pivot towards having an inaugural position focused specifically on policy, advocacy and government relations was really just a nod to the time that Jed found itself in within the national landscape. As you know, Jed Foundation has been a mental health advocacy organization that has been around for two decades now, focused on youth mental health and suicide prevention. And a lot of the work that Jed did was specifically targeted at ensuring colleges and universities had the appropriate programming and supports to serve youth mental health, resources and needs.

Jed has since expanded into working within high schools, and it’s done a lot of work to inform the ways mental health services are provided even in elementary schools, so across the K-20 pipeline. But Jed did all of this under the then existing stigma around mental health. So again, think 20 years ago when this started, when the Satow family unfortunately lost their son Jed to suicide, this was at the height of us turning a blind eye to what we already knew were challenges around youth mental health and the conversations that we just weren’t willing to have as a nation. Now, fast-forward to the pandemic exacerbating a lot of those preexisting needs and demanding that we have systemic approaches in which we are strategically looking at ways to scale programs like Jed Campus. It only made sense for Jed to bring someone in that could help them think through some of that planning and engage state and federal level actors and make considerations for what it looks like to appropriately inform policy. Before I came on, we had what as “a coalition of the willing,” that took on some of this work, but having a separate portfolio for it I think was just about timing and again, watching what the nation really needed.

“I think we take for granted the job that stigma did on our college campuses on the topics of mental health and suicide prevention.”

LW: In what ways will the organization work on policy and with what stakeholders?

ZO: I might start with funding. From my work at Lumina, and now at Jed, the question is where does investment in mental health go? And where will that investment make impact in the larger work in terms of increasing access to mental health resources or helping to solve for the rising rates of suicide amongst younger and younger citizens? One of the things that we have to make consideration for is how we sustain programming nationally. We’ve had conversations with Department of Education, we’ve had conversations with the Department of Health and Human Services. Beyond that, we’ve also thought about research. What are the indicators that we’re looking for to determine success within mental health programming and implementation? We’ve had conversations with SAMHSA, we’ve had conversations with the CDC, we’ve also had conversations with state level folks so when I think about policy, I think not only about federal policy and the national landscape, I think about our, our many little countries, AKA our states.

I say that because there is huge variation in how states invest in mental health and what they choose to invest in. Some states have done a lot of work around increasing programmatic functions and presence like Jed on college campuses and within institutions, while others have leaned heavily into bringing in teletherapy supports to their campuses where it made sense, like in New Jersey, for example.

It feels like a moment of opportunity where it is all hands on deck and everyone has a role to play in making sure that the way we look at mental health is from a collective bargaining approach and that it is seamless in its implementation.

LW: Regarding COVID funds, is there a sense that there’s an appetite for making sure that whatever we invested in mental health, particularly on big state institution campuses, will continue in some fashion? Is this a concern? 

ZO: I think that that’s an opportunity. I think there’s an opportunity for there to be additional investments in mental health, particularly within states. And not just limited to state institutions, but also private institutions, community colleges especially, and even minority serving institutions. I do think though that the funding that’s coming from governors who have had a chance to call out separate budgets for mental health, that’s what we’re really watching closely and seeing how those budgets within states have made impact and driven forward some of the mental health initiatives by state. Because of those investments, JED has collaborated with the State Higher Education Executive Officers Association (SHEEO) to create a mental health learning community whereby states figure out how to go about investing that funding, how to make impact within their state, how to read and then interpret the data around the needs of youth within their state and what partnerships were appropriate to make now that they had some additional funding to support that work that they’re doing. That partnership in particular that we have with SHEEO will help us inform future investments. So my biggest priority is making sure that when we do have funding, that we know what to do with it and we know what’s working within the nation. Otherwise, we run the threat of not being able to appropriately defend what we’re investing in and how impactful those dollars really can be.

LW: Drawing on all of the work you’ve done in mental health, what would you say are the most important things we need to work on?

ZO: I think first about two things. One is messaging and the other is representation. Messaging first. I think we take for granted the job that stigma did on our college campuses on the topics of mental health and suicide prevention. It stopped a lot of work that could have been going on before we had a real crisis on our hands. And so what I never want to ever see happen again to us as a nation is where we get silent about our very basic human needs, which include mental health. It was almost like we were daring to say to each other at one point that the pandemic happened, get over it, let’s move forward. And we know what the data told us about the enrollment crisis, and we knew about what youth were saying about not wanting to return to business as usual. The CDC’s release of data that had suicide rates as low as 10 years old and the second leading cause of death for 10 year olds in 2022 – what that taught us was that we can’t afford to not have these conversations consistently and invariably. We can’t afford to talk student success or student persistence or completion without first considering mental health and the necessary supports. 

I think that then we can start to talk about sustainability and implementation. If I had a magic wand, both financial and otherwise, I would double or triple the current practitioner workforce right now. There is such a shortage when it comes to ensuring that there are enough practitioners to meet the demand that we’re now finally tuning our ears to hear. And then within that demand, ensuring that there’s appropriate representation, not only representation in terms of diversity, equitable representation of diverse, racially diverse practitioners on all college campuses, but also diversity in modality. A psychiatrist versus a therapist versus a social worker have very different functions in the same way that if you broke your leg, you wouldn’t just go to CVS. You would want a specialist to help you with perhaps your very unique challenge. 

I think the other piece that we can expand on as well is how we go about training non-mental health practitioners to recognize when students or youth need help, making training the trainer models more consistent. And we have a few frameworks that exist in the ether, but making sure that they’re consistently available across college campuses is critical because what we’re hearing from faculty and staff alike is that not only do they want to be able to help students, they want to be able to serve them appropriately, but they need the appropriate training and they need to know where to go themselves when they need help. So those are some of the issues we need to invest time and money in. 

LW: Fundamental to JED’s work has been equity and access topped by the Equity in Mental Health Framework.  Where does that work stand now? 

ZO: Back in 2000 when JED was established, one of the first priorities was to ensure that the work that we were doing was equitable and accessible to all students. In 2017, building upon our existing comprehensive approach, we developed the equity and mental health framework in partnership with the Steve Fund, which provides recommendations and implementation strategies to colleges and universities to better support the mental health of students of color. And the way this shows up in the work that we do every day with college campuses is we do pre and post assessments. And within the pre-assessment work that we do, we always ask schools specific things, such as what representation looks like on their campus, how they feel best poised to serve students of color and students with intersecting identities including LGTQIA students, for example, what does it look like in terms of leadership and advocacy?  Is there diversity there and how does that play into the mental health of students of color? 

We’ve made this a priority because of what we know from the data. Students of color are disproportionately impacted when it comes to mental health because of some of the systemic barriers that they already face outside of the college campus such asbeing more likely to be first generation students and not having a plethora of firsthand role modeling on their college campuses unless they choose to go to an HBCU or another MSI. And so we wanted to make sure that when we thought about the work that we’re doing, that this was baked into all of it and if we remain that thoughtful, then all students benefit from those strategies. And it has definitely remained a key part and a key focus of our work. The other thing that I’ll mention is more recently we’ve had to double down on that commitment given some of the challenges that we’ve seen play out over the last year or so, the SCOTUS decision and the striking down of affirmative action, looking at certain Senate bills within Texas and Florida, for example, that struck down DEI initiatives, some of which directly impact the programs and the folks that we work with on campuses. So we are waving a flag that the journey towards equity and equality across a couple of different facets is not over. And when it comes to mental health, we have to be bringing that to the forefront and calling it out if we are serious about serving all students with equity and fidelity.